Challenges in the Daily Living Activities of Patients with Multiple Sclerosis: A Qualitative Content Analysis

Document Type: Original Article

Authors

1 Department of Nursing, School of Nursing and Paramedical, Jahrom University of Medical Sciences, Jahrom, Iran

2 Research Center for Noncommunicable Diseases, Jahrom University of Medical Sciences, Jahrom, Iran

Abstract

Background: Multiple sclerosis (MS) is a chronic nervous system disease with a wide range of
symptoms that affect the self-care ability of patients in daily activities of life; the patients afflicted
with this disease face with many challenges. This study was conducted to explore the activities of daily
living (ADL) challenges of these patients.
Methods: In this conventional content analysis study, fourteen MS patients who were selected
purposively from Iran MS Society in Jahrom (Iran) participated in 2018. Data were gathered using
semi-structured and in-depth interviews. A total of 14 interviews were conducted. These data were
analyzed using MAXQDA 10 Software and the Graneheim and Lundman method.
Results: Analysis of data led to extraction of the main theme “fear of ambiguous future of diseases”
as the most important daily living challenge in MS patients. This challenges were categorized in four
main categories: 1) confrontation to physical, emotional, psychological and behavioral changes, 2) fear
of becoming crippled, 3) tolerance of financial burden of the disease, and 4) confrontation to culturalsocial wrong beliefs.
Conclusion: The results of this study showed that people with MS face a number of ADL challenges.
Fear of an ambiguous future leads to problems in ADL of patients. Therefore, considering the ADL
challenges, health care personnel especially nurses, family members and social organizations can
improve ADL and compromise patients with the disease as much as possible by providing conditions
for application of the self-care activities and their implementation by patients.

Keywords


 

Reference

 

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