The Factors Associated With Disease Mismanagement in Young Patients with Type 1 Diabetes: A Qualitative Study

Document Type: Original article


1 Department of Internal Medicine, Istanbul University, Division of Endocrinology and Metabolism, Istanbul, Turkey

2 Department of Nursing, Faculty of Health Sciences, Cumhuriyet University, Sivas, Turkey

3 Department of Internal Medicine, Division of Endocrinology and Metabolism, Istanbul University, Istanbul, Turkey


Background: The objective of this qualitative study on young adults with type 1 diabetes was to determine the factors associated with mismanagement of diabetes.Methods: In this qualitative study, a descriptive phenomenological and psychological method was followed. Purposeful sampling method was used in this study. 28 young adults aged 18-25 with type 1 diabetes (16 females, 12 males) with HbA1c levels >6.5% were interviewed in-depth. Each interview lasted 40-45 minutes. The recorded interviews were transcribed verbatim, examined line-by-line and coded using open coding techniques and managed by QSR NVivo 7. During the research period, Guba ve Lincolln criteria were used to ensure the accuracy and precision of the study findings. Results: The study identified seven themes which affect the diabetes management of the patients. These themes were negative emotions about the disease, difficulties arising from living condition, difficulties arising from the treatment treatment process, lack of social support, not solution oriented coping methods, concerns about the future and issues of developing knowledge and attitude regarding diabetes management. Conclusion: There are multiple factors affecting the management of diabetes in young adults with type 1 diabetes. Diabetes has a biopsychosocial impact on young adults’ lives, developing a negative attitude toward their future and that of their family.