Ethno-ethics Lens for Palliative Care Decision-making in COVID-19

Document Type : Letter to the editor

Author

Department of Nursing, Tarumanagara School of Health Sciences, Jakarta, Indonesia

Abstract

The Coronavirus Disease (COVID-19), which emerged in late 2019, has spread throughout the world
as a widely known pandemic, claiming over 3 million lives as of April 2021.1 The chaos resulting from
the spread of this infectious disease caused great uncertainty and an urgent need to find an effective
treatment. However, the issue in handling COVID-19 patients is limiting the number of patient care
services available. During the COVID-19 pandemic, palliative care has received significant public
attention.2 The COVID-19 patients with certain conditions who do not meet Intensive Care Unit criteria
can alternatively expect palliative care. Palliative care is handled by the Hospital Palliative Care Team,
which offers decision-making support and psychosocial care for patients and their families.3
Decision-making in palliative care has proven to be complicated because of the uncertain
prognosis and general fears surrounding the decision. This indirectly creates ethical dilemmas
for patients, families, and health care workers. Spiritual and cultural aspects can influence this
decision-making. By providing spiritual support and special care with consideration of the
patient’s values and beliefs during the illness, patients can make earlier decisions and have shown
lower conflict decision-making and greater satisfaction with one’s decisions.4 Spiritual support
would be beneficial and have a positive impact on ethical decision-making in inpatient care.
According to the research of the history of global and multicultural societies in the 1980s,
anthropological researchers have brought light to universalistic-nature ethical principles.5 In other
words, these principles must be analyzed and acculturated with the local culture so that they
can accommodate potential local issues to produce derivative principles. This concept also takes
into account the four broad moral principles that existed to be the basis of modern biomedical
ethics, entitled “Principlism”, which consists of respect for person (autonomy), non-maleficence,
beneficence, and justice.6
Palliative care, as a global issue, has been accommodated by the World Health Organization
(WHO). In 2018, WHO released guidance on integrating palliative care and symptom relief
into responses to humanitarian emergencies and crises. The elaboration shows that several
ethical principles are relevant to be applied in the COVID-19 pandemic within the framework
of “Principlism” to accommodate the issue of diversity in ethno-culture including:
1. Respect for person (autonomy): All patients’ dignity and human rights must be respected,
and health professionals should provide them with all health-related information, respect their
decision-making, and provide appropriate recommendations;
2. Non-maleficence: All patients should have access to palliative care to minimize suffering
and eradicate discrimination based on ethnicity, religion, gender, age, or political affiliation;
3. Beneficence: The patients or family may have conflict with the public good such as infectious
disease, so that the great judiciousness must be shown;
4. Justice: Similar patients should be treated similarly regardless of ethnicity, religion, gender,
age, or political affiliation.2
In conclusion, in response to the COVID-19 pandemic, health workers are faced with the
decision to comply in accordance with the latest patient handling procedures. If health care
workers have made the best efforts, but the patient has experienced a poor prognosis, palliative care
needs to be the most potential alternative. The patient must be accommodated with an informed
choice so that patients with different cultural backgrounds can consider and make the best
decisions for themselves and consciously accept the palliative care decisions that have been taken.
Ethical principles in the framework of “Principlism” in a humanitarian crisis use an ethno-ethics
lens to oversee potential ethical issues surrounding decision-making in palliative care. Health
care workers must sensitively use these ethical guidelines to accommodate the ethno-culture
backgrounds of various patients. This global policy needs to be translated into each country’s
national policies by elaborating the framework of “Principlism” to produce derivative rules that
accommodate local ethical issues in various dilemma situations with COVID-19 patients.

Keywords


DEAR EDITOR

The Coronavirus Disease (COVID-19), which emerged in late 2019, has spread throughout the world as a widely known pandemic, claiming over 3 million lives as of April 2021. 1 The chaos resulting from the spread of this infectious disease caused great uncertainty and an urgent need to find an effective treatment. However, the issue in handling COVID-19 patients is limiting the number of patient care services available. During the COVID-19 pandemic, palliative care has received significant public attention. 2 The COVID-19 patients with certain conditions who do not meet Intensive Care Unit criteria can alternatively expect palliative care. Palliative care is handled by the Hospital Palliative Care Team, which offers decision-making support and psychosocial care for patients and their families. 3

Decision-making in palliative care has proven to be complicated because of the uncertain prognosis and general fears surrounding the decision. This indirectly creates ethical dilemmas for patients, families, and health care workers. Spiritual and cultural aspects can influence this decision-making. By providing spiritual support and special care with consideration of the patient’s values and beliefs during the illness, patients can make earlier decisions and have shown lower conflict decision-making and greater satisfaction with one’s decisions. 4 Spiritual support would be beneficial and have a positive impact on ethical decision-making in inpatient care.

According to the research of the history of global and multicultural societies in the 1980s, anthropological researchers have brought light to universalistic-nature ethical principles. 5 In other words, these principles must be analyzed and acculturated with the local culture so that they can accommodate potential local issues to produce derivative principles. This concept also takes into account the four broad moral principles that existed to be the basis of modern biomedical ethics, entitled “Principlism”, which consists of respect for person (autonomy), non-maleficence, beneficence, and justice. 6

Palliative care, as a global issue, has been accommodated by the World Health Organization (WHO). In 2018, WHO released guidance on integrating palliative care and symptom relief into responses to humanitarian emergencies and crises. The elaboration shows that several ethical principles are relevant to be applied in the COVID-19 pandemic within the framework of “Principlism” to accommodate the issue of diversity in ethno-culture including:

1. Respect for person (autonomy): All patients’ dignity and human rights must be respected, and health professionals should provide them with all health-related information, respect their decision-making, and provide appropriate recommendations;

2. Non-maleficence: All patients should have access to palliative care to minimize suffering and eradicate discrimination based on ethnicity, religion, gender, age, or political affiliation;

3. Beneficence: The patients or family may have conflict with the public good such as infectious disease, so that the great judiciousness must be shown;

4. Justice: Similar patients should be treated similarly regardless of ethnicity, religion, gender, age, or political affiliation. 2

In conclusion, in response to the COVID-19 pandemic, health workers are faced with the decision to comply in accordance with the latest patient handling procedures. If health care workers have made the best efforts, but the patient has experienced a poor prognosis, palliative care needs to be the most potential alternative. The patient must be accommodated with an informed choice so that patients with different cultural backgrounds can consider and make the best decisions for themselves and consciously accept the palliative care decisions that have been taken. Ethical principles in the framework of “Principlism” in a humanitarian crisis use an ethno-ethics lens to oversee potential ethical issues surrounding decision-making in palliative care. Health care workers must sensitively use these ethical guidelines to accommodate the ethno-culture backgrounds of various patients. This global policy needs to be translated into each country’s national policies by elaborating the framework of “Principlism” to produce derivative rules that accommodate local ethical issues in various dilemma situations with COVID-19 patients.

References

  1. World Health Organization. Weekly Epidemiological Update on COVID-19 – 20 April 2021. Geneva: World Health Organization; 2021. [Cited 28 April 2021]. Available from: https://www.who.int/publications/m/item/weekly-epidemiological-update-on-covid-19---20-april-2021.
  2. Wynne KJ. Dying individuals and suffering populations: applying a population-level bioethics lens to palliative care in humanitarian contexts: before, during and after the COVID-19 pandemic. Journal of Medical Ethics. 2020; 46:514-25.
  3. Anneser J. Dying patients with COVID-19: What should Hospital Palliative Care Teams (HPCTs) be prepared for?. Palliative & Supportive Care. 2020; 18:382-4.
  4. Rego F, Gonçalves F, Moutinho S, et al. The influence of spirituality on decision-making in palliative care outpatients: a cross-sectional study. BMC Palliative Care. 2020; 19:22.
  5. Micollier E. Ethno (medical)-ethics as contested knowledge and practice in times of globalization: a case-study from China. Chiang Maï University: ChinaM; 2016.
  6. Beauchamp T, Childress J. Principles of biomedical ethics: marking its fortieth anniversary. The American Journal of Bioethics. 2019; 19:9-12.